Jamie joins call to end the wait for access to Orkambi for people with cystic fibrosis
Jamie Stone is urging the NHS and Vertex pharmaceuticals to reach an agreement to allow access to essential precision drug Orkambi.
People with CF have been waiting for three years for access to Orkambi, a treatment manufactured by Vertex Pharmaceuticals. The medicines are the first to treat the root cause of cystic fibrosis and have been shown to slow health deterioration and reduce the need for frequent hospitalisation.
Deals recently struck between Vertex and the Danish, Dutch, Swedish, German, Austrian and Irish governments demonstrate the UK has fallen behind in supporting people with cystic fibrosis to access the most advanced therapies.
Speaking after the event Jamie said:
“My constituents whose lives are affected by cystic fibrosis – and others across the UK require immediate access to the most advanced medicines to manage this extremely serious condition.
“People with cystic fibrosis should be able to live full, healthy lives for as long as possible. There are drugs available today can help them achieve that and they are being denied access. We are failing in our duty of care to the most vulnerable.”